Hello all,
It has been a LONG time since I have posted. I want to bring you up to date on what has been going on and why I have been absent from the business of blogging.
As some of you may know, AlinaJayne has been sick a lot this cold and flu season. It seems like this normally healthy child has caught every bug imaginable this season. The last time was March 31st to April 5th. She had a high fever , 2 severe nosebleeds a day and headache. We took her to the ER on April 4th for a nosebleed that would not stop, and they completely dismissed us. Sent us home with a nose clamp. No labs, no testing. Being a Nurse Practitioner, I struggled to maintain my professionalism. After this last round of sickeness, she saw the doc, and I asked for labs to be checked. Her white blood cell study came back last Friday, and was markedly abnormal. There are a handful of possible causes for this, and unfortunately, of the possible reasons, leukemia is one of them. I made an appointment for her to see a pediatric oncologist this week.
Fast forward to he evening of Monday 4/12. She woke up in bed, grabbed her head screaming "it hurts so bad, make it stop" and simultaneously projectile vomited. While we were trying to get her ready to go to the ER, she continued to hold her head and scream and vomit. She had a CT scan in the ER and blood work (at this time her white cells were normal again, so the ER doc did not think she needed to see the oncologist), and was admitted for further testing. She had a brain MRI, EEG, and a LOT of blood work. Saw and ENT and neurologist. The tests were normal, the ENT said she has large, fragile veins in her nose that are easily ruptured and not to worry about that (thank God), and she was diagnosed with migraines. On top of this, while she was in for all of the above, she developed some sort of stomach issue, and had 15 watery stools in 2 days-for which they could find no cause-thank God she had an IV. To our disappointment, her white cell count is markedly abnormal again, and she will need to see the hematologist/oncologist.
She came home Thursday PM, and is acting fine now. I really feel bad that a 5 year old has migraines (I have had them for 25 years), but our biggest concern is obviously ruling out leukemia. We are praying that it is only a congenital disorder. The tough part is not having any birth history to tell the physicians about.
Needless to say, we appreciate all prayers and positive thoughts.
I will post an adoption update soon. I feel ChallieJayne deserves her own posting.
More later.
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